2024 Rock N Roll Marathon San Antonio I will be participating in the San Antonio Rock N Roll Marathon on December 7, 2024. Honoring the Unsung Heroes: Our Care Partners Charcot-Marie-Tooth (CMT) doesn’t just impact those of us living with it—it profoundly affects our spouses, parents, siblings, children, friends, and loved ones who stand by us every day, year after year. These incredible care partners navigate this journey with us, often behind the scenes, offering unwavering support, strength, and love. I want to take a moment to honor and thank these remarkable individuals. Today, I’m calling on ALL CMT patients to join me in showing gratitude to their care partners by making a donation in their honor. Your contribution doesn’t just advance vital research—it’s also a meaningful way to express thanks. A Glimpse Into the World of Our Care PartnersHere are just a few examples of what care partners do for us: Offering a steady arm when stepping down a curb or crossing uneven ground Opening water bottles before we even have to ask Taking on household tasks, like taking out the trash Opening up a storage container or baggie for leftovers Reassuring us with kind words, like “You’re beautiful—CMT and all” These everyday acts of kindness, patience, and love mean the world to us! A Personal Message for CMT Donors: "Every dollar you contribute reminds us of the strength we share in this fight. It honors the care partners who stand by our side, watching, helping, and embodying compassion and resilience. Your support empowers us to live our best lives together." Let’s as one recognize and thank the care partners who make our lives brighter, one small act of kindness at a time. Donate today and share your gratitude in a powerful way.
2024 Rock N Roll San Antonio Join there Hereditary Neuropathy Foundation in San Antonio! You can join a team or fundraise in your own! December 7th - 5K & 10K December 8th - Half Marathon & Marathon Fundraising minimum for each runner is $1,500 Questions? courtney@hnf-cure.org
2024 Rock N Roll San Antonio Join there Hereditary Neuropathy Foundation in San Antonio! You can join a team or fundraise in your own! December 7th - 5K & 10KDecember 8th - Half Marathon & Marathon Fundraising minimum for each runner is $500Questions? courtney@hnf-cure.org
2024 Rock N Roll 5k San Antonio So excited to announce that Team CMT is participating in the San Antonio Rock N Roll Marathon on December 7, 2024 (5K and 10K) or December 8th (Half Marathon and Marathon)In honor of Philip Warren (1974-2020) and for our daughter Reagan Warren, please consider supporting with your contribution to fund research and programs for Charcot-Marie-Tooth (CMT). As a caregiver, I witness the physical and emotional toll that my daughter and late husband have endured as they navigate life with CMT.As a Board member, I know how hard the Hereditary Nephropathy Foundation works to advance research and fund programs for CMT.CMT is defined by a life of fatigue, pain, imbalance, isolation and losing today what you could do yesterday. It is surgery, surgery, surgery, muscle atrophy, more surgery, a life of discrimination and lost opportunity, It is 3x more energy and effort and hope needed to live a reduced version of the day I live everyday - a never ending race that defines degenerative disease. It is resilience and grit to get out of bed every morning. It is enduring long nights of restless sleep.I am inspired to endure on behalf of all my family and friends with CMT - show up for them in this moment.Donate: No donation is too small! Join Me and help fundraise: No distance is too short! No speed is too slow! FORWARD IS A PACE.Watch some of our story here: A Day i the LIfe of CMT - The Warren Familyhttps://www.youtube.com/watch?v=jZOYSi2ddh4You can join my team or fundraise in your own! Fundraising minimum for each runner is $500 Questions? courtney@hnf-cure.org
2024 Rock N Roll Marathon San Antonio I will be participating in the San Antonio Rock N Roll Marathon on December 7, 2024.Please consider making a contribution to my page to fund research and programs for Charcot-Marie-Tooth (CMT) research. This cause is very important to me as I live with CMT.No donation is too small!
2024 Rock N Roll San Antonio 5KPlease support the Hereditary Neuropathy Foundation in San Antonio! On December 7th, I am joining Team CMT as we participate in the San Antonio Rock ‘n’ Roll 5k, one of 4 distances at the Rock 'n' Roll Marathon. Please consider joining me on the course or donating to my fundraiser and cheering me on. Every donation, big or small, will help bring us closer to a cure and improve the quality of life for those living with these conditions. Together, we can make a difference! Click on "Donate" and help the team reach our fundraising goal. Or join us on the course and raise money by clicking "Become a Fundraiser". Thank you The Hereditary Neuropathy Foundation (HNF), a non-profit 501(c)3 organization which mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families with critical information to improve quality of life, and fund research that will lead to treatments and cures. https://www.hnf-cure.org/
2024 Rock N Roll San Antonio Join there Hereditary Neuropathy Foundation in San Antonio! You can join a team or fundraise in your own! December 7th - 5K & 10K December 8th - Half Marathon & Marathon Fundraising minimum for each runner is $1,500 Questions? courtney@hnf-cure.org