2022 Boca Raton, Florida
    Chiari Awareness
    5k Run/1 mi Fun Run/1mi Walk




    Sunday, September 18, 2022

    6:45am 5k Run & 1mi Fun Run Registration
    7:30am 5k Run & 1mi Fun Run Start
    8:00-8:45am 1mi Walk Registration/Social Time
    8:30am 5k Run & 1mi Fun Run Awards
    9:00am 1 mi Walk Start
    9:15am Raffle Ticket Drawings (You do not need to be present to win)

    South County Regional Park

    MaryLou Berger Pavilion
    Sunset Cove Amphitheater
    20405 Amphitheater Circle
    Boca Raton, FL US 33498


    Noah Forman
    [email protected]
    (561) 289-1272

    Cathy Poznik (Bobby Jones CSF)
    [email protected]
    (330) 573-5560


    Boca Raton, FL Postcard

    Boca Raton, FL Sponsorship Form (PDF)

    2022 Walk Recognition Prizes (PDF)


    Chiari, syringomyelia, Ehlers-Danlos Syndrome or a related disorder can make a person feel powerless. But what if you-- just YOU-- could be the one thing that makes their lives better? 

    YOU can be the hope for a better future!

    [email protected] is a collection of one-mile casual walks/runs and social events around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, Ehlers-Danlos Syndrome and related disorders.

    Bring your awareness colors to the event.  You only need to walk/run as far and raise as much as you can. Every step, roll or crawl is a move in the right direction towards relief from pain for so many.

    We hope that with help from walkers like you, we will raise funds for educational, advocacy, awareness and research programs.

    Bring your colors to the event!

    Whether you are supporting awareness for Chiari malformation with purple, syringomyelia with blue, or Ehlers-Danlos Syndrome with zebra print, wear your colors to help us build awareness!

    Bobby Jones CSF Mission

    To advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders

    You have no teams at this time.

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