Duluth, MN
    [email protected] walk
    VIRTUAL

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    $2,000 Goal

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    Walk Chairperson:
    Christy Schmidt
    (218) 940-8365
    [email protected]

    Vero Beach, FL Flyer (PDF)

    2022 Walk Recognition Prizes (PDF)

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    Chiari, syringomyelia, Ehlers-Danlos Syndrome or a related disorder can make a person feel powerless. But what if you-- just YOU-- could be the one thing that makes their lives better? 

    YOU can be the hope for a better future!

    [email protected] is a collection of one-mile casual walks and social events around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, Ehlers-Danlos Syndrome and related disorders.

    Bring your awareness colors to the walk.  You only need to walk as far and raise as much as you can. Every step, roll or crawl is a move in the right direction towards relief from pain for so many.

    We hope that with help from walkers like you, we will raise funds for educational, advocacy, awareness and research programs.

    Bring your colors to the walk!

    Whether you are supporting awareness for Chiari malformation with purple, syringomyelia with blue, or Ehlers-Danlos Syndrome with zebra print, wear your colors to help us build awareness!

    Bobby Jones CSF Mission

    To advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders

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