2022
    [email protected]
    solo walks

    $0 Total Raised

    $10,000 Goal

    0 Donors

    0 Fundraisers

    Become a Solo Walker

    [email protected]
    Solo Walks

    Location:
    Walk anywhere - Walk any time!

    Questions:
    Cathy Poznik
    [email protected]
    (330) 573-5560

    Solo Walk Flyer (PDF)

    2022 Walk Recognition Prizes (PDF)

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    Chiari, syringomyelia, Ehlers-Danlos Syndrome or a related disorder can make a person feel powerless. But what if you-- just YOU-- could be the one thing that makes their lives better? 

    YOU can be the hope for a better future!

    [email protected] is a collection of one-mile casual walks and social events around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, Ehlers-Danlos Syndrome and related disorders.

    You can have your own [email protected] Solo Walk! Invite your family, friends and neighbors to join you or head out on your own and take a brief stroll around your neighborhood at any time. You will still be able to raise money and walk "with us" as a solo [email protected] walk.

    We hope that with help from walkers like you, we will raise funds for educational, advocacy, awareness and research programs.

    Wear your colors to your walk!

    Whether you are supporting awareness for Chiari malformation with purple, syringomyelia with blue, or Ehlers-Danlos Syndrome with zebra print, wear your colors to help us build awareness!

    Bobby Jones CSF Mission

    To advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders

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